Background
Chronic heart failure is a complex and multifaceted syndrome characterised by an unpredictable
trajectory, high symptom burden and reduced quality of life. Although palliative care
is recommended, patient, provider and system factors limit access.
Aim
To examine the knowledge, attitudes and perspectives of health care professionals
towards end of life care and palliative care for patients with chronic heart failure.
Design
This is an integrative review.
Data sources
CINAHL, Academic Search Complete and SCOPUS were searched. Specific inclusion criteria
and search terms were used. The integrative review method entailed analysing data
from primary articles using the constant comparison method and then synthesising data.
Results
Twenty-six (26) articles were selected that explored health care professionals’ perspectives
towards end of life care and palliative care. The categories that emerged were grouped
into patient, provider and system issues. Most health care professionals involved
in providing care to heart failure patients have misperceptions of palliative care,
often confusing it with end of life and hospice care. This hinders patients’ access
to palliative care as determining the end of life period in heart failure is difficult.
Conclusions
Exploring health care professionals’ perspectives towards the delivery of end of life
care and palliative care is important for understanding how their practice influences
the delivery of palliative care for heart failure patients. Emphasis on increasing
awareness of the principles of palliative care in the health care community, as well
as addressing organisational issues will improve the care delivered to these patients.
Keywords
To read this article in full you will need to make a payment
Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:
Subscribe to Heart, Lung and CirculationAlready a print subscriber? Claim online access
Already an online subscriber? Sign in
Register: Create an account
Institutional Access: Sign in to ScienceDirect
References
- A matter of definition — key elements identified in a discourse analysis of definitions of palliative care.Palliat Med. 2008; 22: 222-232
- Palliative care.World Health Organisation, Geneva2007
- Palliative care for older people: better practices.2011
- The global health and economic burden of hospitalizations for heart failure: lessons learned from hospitalized heart failure registries.J Am Coll Cardiol. 2014; 63: 1123-1133
- The progression from hypertension to congestive heart failure.JAMA. 1996; 275: 1557-1562
- Comprehensive heart failure practice guideline.J Card Fail. 2006; 12: e1-e2
- 2016 ESC guidelines for the diagnosis and treatment of acute and chronic heart failure.Rev Esp Cardiol (Engl). 2016; 69: 1167
- Impact of symptom prevalence and symptom burden on quality of life in patients with heart failure.Eur J Cardiovasc Nurs. 2005; 4: 198-206
- “Not the ‘grim reaper service’”: an assessment of provider knowledge, attitudes, and perceptions regarding palliative care referral barriers in heart failure.J Am Heart Assoc. 2014; : 3
- Palliative care for patients with heart failure: facilitators and barriers — a cross sectional survey of German health care professionals.BMC Health Serv Res. 2016; : 16
- End-of-life care conversations with heart failure patients: a systematic literature review and narrative synthesis.Br J Gen Pract. 2011; 61: e49-e62
- Palliative care in advanced heart failure: an international review of the perspectives of recipients and health professionals on care provision.J Card Fail. 2011; 17: 231-252
- The integrative review: updated methodology.J Adv Nurs. 2005; 52: 546-553
- Sythesizing research: a guide for literature reviews.3rd ed. Sage Publications, Thousand Oaks, CA1998
- Qualitative research and evaluation methods.3rd ed. Sage Publications, Thousand Oaks, CA2002
- Heart failure nurses’ experiences of specialist palliative care.End Life Care. 2008; 2: 55-60
- Trainee experiences of delivering end-of-life care in heart failure: key findings of a national survey.Br J Cardiol. 2015; 22: 26
- Improving end-of-life care for patients with chronic heart failure: “Let’s hope it’ll get better, when I know in my heart of hearts it won’t”.Heart. 2007; 93: 963-967
- “Sometimes we can’t fix things”: a qualitative study of health care professionals’ perceptions of end of life care for patients with heart failure.BMC Palliat Care. 2016; : 15
- When all else has failed: nurses’ perception of factors influencing palliative care for patients with end-stage heart failure.J Cardiovas Nurs. 2005; 20: 18-25
- Physician attitudes toward end-stage heart failure: a national survey.Am J Med. 2008; 121: 127-135
- A survey of clinician attitudes and self-reported practices regarding end-of-life care in heart failure.Palliat Med. 2015; 29: 260-267
- Doctors’ perceptions of palliative care for heart failure: focus group study.Br Med J. 2002; 325: 581-585
- Physicians’ experiences of palliative care for heart failure patients.Eur J Cardiovas Nurs. 2011; 10: 64-69
- Modelling services to meet the palliative care needs of chronic heart failure patients and their families: current practice in the UK.Palliat Med. 2007; 21: 385-390
- Health care professionals’ attitudes regarding palliative care for patients with chronic heart failure: an interview study.BMC Palliat Care. 2016; : 15
- Patient, carer and professional perspectives on barriers and facilitators to quality care in advanced heart failure.PLoS ONE. 2014; : 9
- Heart failure and palliative care: implications in practice.J Palliat Med. 2009; 12: 531-536
- Heart failure specialist nurses’ use of palliative care services: a comparison of surveys across England in 2005 and 2010.Eur J Cardiovasc Nurs. 2012; 11: 190-196
- Making sure services deliver for people with advanced heart failure: a longitudinal qualitative study of patients, family carers, and health professionals.Palliat Med. 2009; 23: 767-776
- Doctors’ understanding of palliative care.Palliat Med. 2006; 20: 493-497
- Letting go: a qualitative study of acute care and community nurses’ perceptions of a ‘good’ versus a ‘bad’ death.Aust Crit Care. 2005; 18: 104-113
- Perspectives of health-care providers toward advance care planning in patients with advanced cancer and congestive heart failure.Am J Hosp Palliat Med. 2016; 34: 423-429
- Knowledge of palliative care: an evaluation of oncology, intensive care, and heart failure nurses.J Hosp Palliat Nurs. 2013; 15: 307-315
- Palliative care for those with heart failure: nurses’ knowledge, attitude, and preparedness to practice.Eur J Cardiovasc Nurs. 2014; 13: 124-133
- Deactivation of left ventricular assist devices: differing perspectives of cardiology and hospice/palliative medicine clinicians.J Card Fail. 2016; 23: 708-712
- Clinicians’ attitudes regarding withdrawal of left ventricular assist devices in patients approaching the end of life.Eur J Heart Fail. 2013; 15: 1262-1266
- Hospice and palliative medicine clinicians’ attitudes towards left ventricular assist device deactivation.J Pain Symptom Manage. 2015; 49: 456
- Barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners’ views and experiences.PLoS ONE. 2014; 9: 1-9
- Palliative care for the seriously ill.N Engl J Med. 2015; 373: 747-755
- Executive summary of the guidelines on the diagnosis and treatment of acute heart failure.Eur Heart J. 2005; 26: 384-416
- ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2012.Eur J Heart Fail. 2013; 15: 361-362
- 2013 ACCF/AHA guideline for the management of heart failure: executive summary: a report of the American College of Cardiology Foundation/American Heart Association Task Force on practice guidelines.Circulation. 2013; 128: 1810-1852
- The problem of caring for the dying in a general hospital; the palliative care unit as a possible solution.Can Med Assoc J. 1976; 115: 119-121
- Managing beyond an uncertain illness trajectory: palliative care in advanced heart failure.Int J Palliat Nurs. 2006; 12: 566-573
- A model of palliative care for heart failure.Am J Hosp Palliat Med. 2009; 26: 399-404
- 2016 ESC guidelines for the diagnosis and treatment of acute and chronic heart failure.Eur Heart J. 2016; 37: 2129-U130
- Activities of home-based heart failure nurse specialists: a modified narrative analysis.Am J Crit Care. 2005; 14: 426-433
Article info
Publication history
Published online: October 16, 2018
Accepted:
October 8,
2018
Received in revised form:
August 6,
2018
Received:
April 11,
2018
Identification
Copyright
© 2018 Australian and New Zealand Society of Cardiac and Thoracic Surgeons (ANZSCTS) and the Cardiac Society of Australia and New Zealand (CSANZ). Published by Elsevier B.V. All rights reserved.